Monday, December 13, 2010
Well its December 2010
This month is going very good so far you have not been sick yet this week and its the 13th so doing very well. In about a week or 2 we will find out you blood test results and see what is going on with your immune system. We love you very much. You are doing so good. Hey on the 2nd through the 5th you and bubba stayed with Bama and Papa the whole weekend you loved it. But, me and your daddy missed you sooo very much. I will be a while before we let you both go again for awhile LOL....
Wednesday, November 3, 2010
Nov. Its a new month
Its Nov. and its a new month and its off to a great start. Nov. 2nd we had to go see Dr. Menandez the pulmonolgist and she took a chest x-ray which she hadn't taking since we first started going there. And after she took them she came in and said that the one that was smaller than the other and that was parcally callasped is the same size as the other lung now. Praise God you are getting healed also they weighed him and he weighed 21 lbs 10oz. PRAISE GOD!!!!
Well, its the 8th of Nov. and today you have 2 apts at ACH Endocrinologist and Immunologist. Endocrine says that your doing really good he would no longer call you failure to thrive (but, the other drs. do). and wants to see you in May again. And Immune took some blood work we should get the results in 2 wks and then we will go get blood work again in 4 more wks. they also gave you an phenuniona shot. So hopefully we will have answers soon. We found out we left buddy there when we got home so I called and they found him and they mailed him to us and it got here on Sat. the 13th. and a letter came with him it read " Joshua, Buddy said to tell you he enjoyed his stay at Arkansas Children's Hospital and wants you to know he was taken very good care of! Buddy also told me how much he missed you! You and Buddy come see us anytime :) Mrs. Rawley, if you need anything on your next visit-(hopefully you won't need to come back, but if you do...) Our number in security is 501-364-4353! Have a wonderful week!! Tami Curry It was so sweet. I love ACH they mailed this to us without a charge.
Well, I thought we were in the clear this week but I guess not the day before yesterday which was the 16th he got really sick with a bad cough so I took him to see Dr. Fred he said he seems ok to him and then the 17th I had to take him back to the ER at about 7:30am because we was getting worse so they gave him 2 breathing treatments, preslone, and a shot of steriods then sent us home. Well this morning on the 18th about the same time we went back to the ER and his pulse ox got so low they had to put you on oxygen, they gave you IV fluids, IV antibiotics, and 3 breathing treatments and sent you home which as of right now at 6:45pm I am not real sure we wont be back up there. You also had a 100.2 temp, throwing up and dihrea also so not sure whats going on but I am nervous. Well, tonight we took you back to the ER and they gave you a nasuea med. so hopefully that will help.
Today is the 22nd and we had to take you to Dr. Fred's he gave you a Z-pack I hate that you are being sick lately I dont want to but, I am wondering if it would better for you so you can get well faster if they would just hospitialzied you this is so frustrating if your not any better by Friday I am going to be one ticked off MOMMA BEAR UGH!!!!!!!
Well, its the 8th of Nov. and today you have 2 apts at ACH Endocrinologist and Immunologist. Endocrine says that your doing really good he would no longer call you failure to thrive (but, the other drs. do). and wants to see you in May again. And Immune took some blood work we should get the results in 2 wks and then we will go get blood work again in 4 more wks. they also gave you an phenuniona shot. So hopefully we will have answers soon. We found out we left buddy there when we got home so I called and they found him and they mailed him to us and it got here on Sat. the 13th. and a letter came with him it read " Joshua, Buddy said to tell you he enjoyed his stay at Arkansas Children's Hospital and wants you to know he was taken very good care of! Buddy also told me how much he missed you! You and Buddy come see us anytime :) Mrs. Rawley, if you need anything on your next visit-(hopefully you won't need to come back, but if you do...) Our number in security is 501-364-4353! Have a wonderful week!! Tami Curry It was so sweet. I love ACH they mailed this to us without a charge.
Well, I thought we were in the clear this week but I guess not the day before yesterday which was the 16th he got really sick with a bad cough so I took him to see Dr. Fred he said he seems ok to him and then the 17th I had to take him back to the ER at about 7:30am because we was getting worse so they gave him 2 breathing treatments, preslone, and a shot of steriods then sent us home. Well this morning on the 18th about the same time we went back to the ER and his pulse ox got so low they had to put you on oxygen, they gave you IV fluids, IV antibiotics, and 3 breathing treatments and sent you home which as of right now at 6:45pm I am not real sure we wont be back up there. You also had a 100.2 temp, throwing up and dihrea also so not sure whats going on but I am nervous. Well, tonight we took you back to the ER and they gave you a nasuea med. so hopefully that will help.
Today is the 22nd and we had to take you to Dr. Fred's he gave you a Z-pack I hate that you are being sick lately I dont want to but, I am wondering if it would better for you so you can get well faster if they would just hospitialzied you this is so frustrating if your not any better by Friday I am going to be one ticked off MOMMA BEAR UGH!!!!!!!
Saturday, October 23, 2010
Well, the month is almost over and we are all doing pretty good. You are finally well but, bubba has a double ear infection. YOu are being very onery lately I dont know if its the seizer meds or just 2's but whatever it is I am ready for it to be over. You are talking so much better now and you are eating alot better (chewing and eating). Well, you are in all 18months clothes now sometime before Oct. is over I am going to through your clothes again and get rid of all the 12months yeah my big I love you and your brother so much you guys and your Daddy is everything to me but, only after God and because of God he has blessed me with you all and I am so blessed to have you.
Tuesday, October 12, 2010
Well the Month of Oct. is not off to a good start
Well, as you know Joshie is not doing real good this month. Today is the 12th and he went again to see Dr. Fred which sent us to outpatient at the hospitial to do a chest x-ray, CBC, blood culture, and a urine sample so hopefully we will soon know what is going on. Like, sometime today. I am getting so irratated to not know whats going on with my baby.
Ok found out that Joshie has pneumonia!!! How in the world did he get it I wonder so they gave him a Z-Pack with no inhalers but I am going to give him the one we have extra!!
Ok found out that Joshie has pneumonia!!! How in the world did he get it I wonder so they gave him a Z-Pack with no inhalers but I am going to give him the one we have extra!!
Saturday, October 2, 2010
OCT.
Well, we took you to the dr. again on Fri. 8th and all he said was your thoart is redder whatever i just want you to felling better again. Well, today is Sunday the 10th and you are still havig 100.3 yesterday and today not sure what to do you are couping now and have a runny nose. So, not sure whats going on cant wait till the 8th of Nov. to see the immume dr.
Well, today is the first day of Oct. you taken 2 doses of your meds and by afternoon your were really cranky not sure why did not fall asleep until 1:30pm for a nap. Woke up around 3:00 and you were ok but, by 4pm you were running 102 temp call ACH they said wait and give you tyelonol so I did it took about 30mins to get it down to 99.9 but I think about 6 pm I am taking you in to the St. Ed's ER I am just a little concreaned I know the Lord has you in his arms but I need to use common sence too I am a little worried. Just wondering if you have some virus or something. So I will update as soon as I can.
Well, they kept Joshua until midnight and they stuck him 3x which really makes me mad but the blood tests came back pretty much normal except they said he has another virus (but, not contagious)because he has so many they are calling it viral syndrome so there we go.
Well, today is Sunday Oct. 2nd and its Miracle Sunday so we went to church. This morning I got you out of the nursery and you were just acting kinda different (you know just not very responsive). But, after your nap you wre much better and hung out with the youth tonight in church no nursery for you today lol.
Well, its the 5th and yesterday we had a WIC appt for you and you are gaining weight so excited about that you are now 21 lbs 6oz the biggest you have ever been and thats after a hospitial stay so Praise God you are doing so much better and last night you had a small temp again not sure what is going on but, God has it all under control. We have been so busy lately but I guess in a way its a good thing. Your having therpy today you have been doing really good the last couple of sessions.
Today is Thursday Oct. 7th and we went to Dr. Fred's due to the fact you are still having fever since Sat. Oct. 1 but, noy sure whats going on still so we are getting really frastrated. But, they did weigh yo and you weighed 21 lbs 14oz. so you are growing still so Praise God for that. We love you baby very much.
Well, today is the first day of Oct. you taken 2 doses of your meds and by afternoon your were really cranky not sure why did not fall asleep until 1:30pm for a nap. Woke up around 3:00 and you were ok but, by 4pm you were running 102 temp call ACH they said wait and give you tyelonol so I did it took about 30mins to get it down to 99.9 but I think about 6 pm I am taking you in to the St. Ed's ER I am just a little concreaned I know the Lord has you in his arms but I need to use common sence too I am a little worried. Just wondering if you have some virus or something. So I will update as soon as I can.
Well, they kept Joshua until midnight and they stuck him 3x which really makes me mad but the blood tests came back pretty much normal except they said he has another virus (but, not contagious)because he has so many they are calling it viral syndrome so there we go.
Well, today is Sunday Oct. 2nd and its Miracle Sunday so we went to church. This morning I got you out of the nursery and you were just acting kinda different (you know just not very responsive). But, after your nap you wre much better and hung out with the youth tonight in church no nursery for you today lol.
Well, its the 5th and yesterday we had a WIC appt for you and you are gaining weight so excited about that you are now 21 lbs 6oz the biggest you have ever been and thats after a hospitial stay so Praise God you are doing so much better and last night you had a small temp again not sure what is going on but, God has it all under control. We have been so busy lately but I guess in a way its a good thing. Your having therpy today you have been doing really good the last couple of sessions.
Today is Thursday Oct. 7th and we went to Dr. Fred's due to the fact you are still having fever since Sat. Oct. 1 but, noy sure whats going on still so we are getting really frastrated. But, they did weigh yo and you weighed 21 lbs 14oz. so you are growing still so Praise God for that. We love you baby very much.
Thursday, September 30, 2010
Last day of Sept.
Hey, we're back. This last week you have eaten alot I am talking about eating like a normal 2yr little growing boy. But, you are also have little episodes where you will just go blank and no response for about 30 to 45 secs. today you have done it 3 or 4x and then you took a 4hr nap no exaggration I was a little worried so I called Dr. Fred the nurse talked to him and they said in their report from ACH we were suppost have the everyday med Keppra which I told them they told me they cancled it because he did not need it but, then they also did not tell him anything about the mass on the MRI so in the morning Oct. 1st they are calling ACH then calling me back to see what the new plan will b if any new one at all.I am so sick of the Dr.'s not communicating back and forth in the right way. Well, they called me back and they prescribed you the Keppra so we will see whats going to happen.
Thursday, September 23, 2010
Back to ACH
STRENGTH WILL RISE as we wait upon the Lord.
We will wait upon the Lord,
We will wait upon the Lord.
(repeat)
Our God You reign forever,
Our Hope, our strong deliverer.
You are the everlasting God,
The everlasting God.
You do not faint, You won't grow weary.
You're the defender of the weak,
You comfort those in need.
You lift us up on wings like eagles.
This song came to mind today Sept. 26th and I had to post it that way I could remind myself and others that God is in control. I know that he is but sometimes I need to be reminded.
Well, its Sat. 25th of Sept. and Joshie at a half of double meat cheeseburger and a small bowl of grapes. He is eating alot better since he has been out of the hospitial this week then he has been eating in the past month.
Its was the 20th but you had another episode (seizure like) again so I called the doctor and he sent us to ACH ER where we were keep until 23rd. We are going to have to go have some special test ran. So, that means that all therpy is cancled for this week. Well, I want to update everyone on Johie he did great the EEG and MRI was normal not sure what is causing the seziures but we are getting some meds for just in case it happens again it is not an everyday med either Praise God. (they did find a small mass on the MRI but, nothing to be concerened about. I was crying because when your a mother and someone tells you they found a tumor on the MRI of your child all I heard was tumor, brain, my baby. Dr. Wilamson said why are you crying did he have another seizur? I said no but I was a little upset what was told me about the mass he said stop crying like I wasn't allowed to have any feelings about what was said he said its nothing. But, to me its still is something just to know what all we have been through he doesn't even understand. I just don't know how Dr.s cannot have feelings towards the parents anymore its very upsetting but one day it all will b under the rug and we will go on as a normal family and maybe not even remember this LOL. We are home now and going to get back to our everyday life I just want to thank everyone for prayers and thoughts you guys rock....
We will wait upon the Lord,
We will wait upon the Lord.
(repeat)
Our God You reign forever,
Our Hope, our strong deliverer.
You are the everlasting God,
The everlasting God.
You do not faint, You won't grow weary.
You're the defender of the weak,
You comfort those in need.
You lift us up on wings like eagles.
This song came to mind today Sept. 26th and I had to post it that way I could remind myself and others that God is in control. I know that he is but sometimes I need to be reminded.
Well, its Sat. 25th of Sept. and Joshie at a half of double meat cheeseburger and a small bowl of grapes. He is eating alot better since he has been out of the hospitial this week then he has been eating in the past month.
Its was the 20th but you had another episode (seizure like) again so I called the doctor and he sent us to ACH ER where we were keep until 23rd. We are going to have to go have some special test ran. So, that means that all therpy is cancled for this week. Well, I want to update everyone on Johie he did great the EEG and MRI was normal not sure what is causing the seziures but we are getting some meds for just in case it happens again it is not an everyday med either Praise God. (they did find a small mass on the MRI but, nothing to be concerened about. I was crying because when your a mother and someone tells you they found a tumor on the MRI of your child all I heard was tumor, brain, my baby. Dr. Wilamson said why are you crying did he have another seizur? I said no but I was a little upset what was told me about the mass he said stop crying like I wasn't allowed to have any feelings about what was said he said its nothing. But, to me its still is something just to know what all we have been through he doesn't even understand. I just don't know how Dr.s cannot have feelings towards the parents anymore its very upsetting but one day it all will b under the rug and we will go on as a normal family and maybe not even remember this LOL. We are home now and going to get back to our everyday life I just want to thank everyone for prayers and thoughts you guys rock....
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