The Start of a New Year Jan. 2010

Well, Its Januaray 2010 now and all is going ok I guess. You still have been throwing up again for about 4 days again so I called the dr. the one on call and she had a attitude so I will wait to Monday to call you Dr. Frem. But, on the 2nd you seem to be doing better still not eating but so far by 2pm no throwing up and your drinking still. Well, its Januaray 3rd and we had to take you to the ER you had been sleeping for 7 hours and only drank 5oz all day we were very worried but the dr. said you should be fine. The ER dr. called the GI dr on call who was Dr. OConner and she said she didn't understand what the problem was and why he was calling he was a little upset and so was I but, we went home then a wonderfull thing happen on the 4th you started eating not a lot but a little here and there, then the 5th came you ate 1/4 peanut butter sandwich and a 1/4 chesse sandwich plus alot of you formula throughout the day. So Praise God he is touching you little body we just have to give him time. Its like Josie Duggar (who's parents I met on December 20th down in the hospitial cafe) she and you are in God's hands. We will see what the days ahead lie for you

Well today is a new day it is the 7th of the month and Joshie has been taken his diaper off for a few weeks now so I told him you don't take if off unless you need to go pee pee and he nodded his head yes and said pee pee so I said then go so he walked in the bathroom and sat on the training potty we bought Christian (that he never once used) and sat there so there is hope by the time he is 2yrs maybe. Christian was 3yrs old. Also, I noticed today he has 5 teeth broke through finally and another going to come throgh pretty soon.

Well today is Jan. 13th we go back to ACH to see Dr. Frem they sent us home with a urinealis and weekly weight checks from home health. Joshie is 16lbs and 15oz still the same as he was on the 24th of Dec. They still don't really know whats going on but, Dr. Frem is awesome she is really trying to find out whats going on. Dwight came with me and Joshie and we got to see Michelle and Jim Bob again it was so awesome. They took pics of us which was very sweet, I hope one day we will get to meet them all.

Carla who I spoke about earlier is a great friend (not just counslor) she tells me if I am right or wrong and she has always been there for me and Joshua. She tells me too remember that I am mom and I know my child more than anyone and that I have to speak for him because he can't. I wish I had her when we were in the NICU, but, at least we have her and Dr. Shaffer now.

Well, its the 19th and you have been throwing up for 3days again but, its like a yellowish color. So I am not sure what to do except just let them know at ACH.
You have also learned a few more words you are saying milk and bubbles now a little.
Today is the 20th and you are really sick you have an ear infection and still throwing up so we will see how this goes.

Well, on Monday the 25th you started eating again just like you used to. Praise God he healed you.

Joshie's 1st Birthday until Dec. 2009

Joshua David we love you so much and we want you to know that we are so blessed to have you apart of this family. We thank God for you and are grateful that he decided to bless us with a beautiful baby boy 1 yr ago today. Well, as you guessed today is your birthday and you are so spoiled you had a triple birthday party with you big brother Christian, and with your Poppa Happy Birthday little man.

Today August 14th was your very first hospital stays, (the first of many we will soon find out). You had to get IV fluids and stay over night.

Today September 12th was the very first time you were ever babysat by anyone other than Bama and Poppa it was Mark and Karen Hicks they were so good with you. September the 21st you were taken off the bottle and put on sippy cups with pedisure.

We are finally in October of 2009 and you are now in size 9-12 months clothes still can wear some 6-9months but you are now growing yeah. The 18th you started walking all over the place we are so proud of you.

Well, October came and went and now its November and you started to get real sick throwing up for 8 days so we decided to take you to Arkansas Childrens Hospital in Little Rock since we already delt with the hospitals here and they really did nothing. We got to the ER they ran test and were going to send us home because they could not find anything wrong well I was not going to take that so I demaned to see a Gastorinterologist and within 15mins of looking at you we were admitted. They found out that you had a delayed digestive system and small acid reflux should not be causing this. So, we were admitted from the 11th to the 16th.
Well, we started Developmental therapy with a home service, and her name is Terri. She is so sweet you really like her.

Well, Thank God Novemeber is over. Its now December and you are now is size 12 month clothing I got rid of all the other clothing. You also stopped drinking very much and stopped eating at all. But, then again it gets bad again you started throwing up again and did it this time for 9days and 3 to 4x a day so we go back to the ACH and again they admit us. We are there from the 16th to Christmas Eve. They do all sorts of test including a biopsy but still shows nothing major so the conclude for now you just have a milk allergy so you are off of all milk products. And, so they send you home on a feeding tube which I had to learn how to put it in. When we get sent home we take you straight to Bama's and Poppa's house to be with them and go see Christian which we missed so much. And, guess what about 4am on the day after Christmas you take it out and I called the Dr. Gibbons he said don't worry about it right now because praise God on Christmas you started to drink since you stopped on the 1st of December. PS you got to have your first White Christmas. 2009.

Joshie's 6months old until 1st Birthday.

Well, Its 2009 and we went to see the Geneticist Dr. Shaffer and Counslor Carla Bell they are so awesome. Since Joshie was diagnosed with Noonans they want to keep an eye on him. Today Dr. Shaffer looked at me and a old baby pic of me and told me its time for me to get diagnosed I laughed and said this is a Children's Hospitial he said (pretty much too bad go give your blood. and I found out I have Noonan's also after almost 28yrs.)

Hi, we are back and its the 4th of Feburary and Dr. Mendendez you pulomologist took you off of meds and also took you of completly for OXYGEN. Its now the 13th and you slept in your crib all night long. Feburary 23rd you are sitting up really good now and on the 26th you rolled from you tummy to back. But, in between these dates it is on the 25th and we had a hit and run. Yeah, we are all so proud of you.

Well, its finally April, oh yeah and before you turned 9 months you are now wearing 3-6 months clothes but still can wear some 0-3 you are my little peanut. You are so tiny still and Dr. Fred will not put you on the Noonans growth chart and we are getting so frustrated we feel that he does not no anything about Joshie's condition and its really starting to make us mad.

It's May the 14th now and from a lying down postion youi can pull on somthing and stand up you are doing so good. By, May 30th you started crawling all over the place. We took you swimming sometime in June and you started breaking out in a rash we weren't sure what was going on so we took you to the ER and you got a shot we finally relize what it was about 1 week later.

Today is June 18th and you can now wear 6-9month clothing and you are in now size 2diapers. You are still such a little peanut. June 28th was the start in a new begining in our family's spiritual walk with God. We started going to Evangel Temple and told each other we are not going to join in any time soon well within 2 to 3 months later we joined. Praise God for what he is doing in our walk with him and our family. July 12th Pastor Don Hutchings spoke about you and the Joshua and David in the Bible. It was so amazing.

Joshie's Birth to about 6 months old.

It was November of 2007 and we decided we wanted another beautiful baby. December came and on the 13th we found out we were going to have another one. You would be due the 25th of August. But, for some reason we weren't very excited like we were with our first born. On December 21st we had our first ultrasound but we could not see a heartbeat we were not sure what was going on. We were so scared but we had another appointment on the 3rd of January and everything was ok. January and Feburary came and went.



Then, it was March the 10th and I started having contractions they lasted for a few days. Then on the 25th I finally got to feel you move it was so amazing again. On April the 4th we were going to get it confirmed that you were a little girl (or so we thought), came time and you were a boy what we asked the x-ray tech are you sure she said yes no mistake. I started crying I wanted a little girl so bad but then you turned you head and smiled in the ultrasound pic and I said its fine we are going to have another wonderful, healthy baby boy. I went home and told God he needed to name you because I did not have a boys' name picked out. He told me Joshua David. Ok, so I told your daddy he did not like it but oh well, that's what God named you and that was final.



On April 7th was the scariest day of my life we had the ultrasound results and it said you had cysts on the brain, heart defect, fluid on the lung, and a swollen kidney. We did not know what to do but tell the family everyone was so scared. Its finally April 23 and today I had contractions again I think it was just because of all the stress. I did not have any more contractions until May 29th and on the 30th we went to the hospital I was dehydrated the I went home. Started having contractions again on the 2nd of June but I did not go in this time not until the 5th and again I was dehydrated. I was having contractions on and off for a few more weeks went in the hospital a few times but nothing major.



Today, was June 17 and today was the first time they asked me it might be a good idea to consider termination (that was out of the question). We were 30 weeks today but, I had so much fluid I was measuring 35 weeks. On July 12th was Christians birthday party and that night Aunt Cathy and me set up for side of the room it was so cute.



Today July 18th was the day and it started about 3am I woke up having horrible contractions and about 5am Daddy took me to the hospital and they broke my water at 8am I was alone because Daddy took Bubba back home to go back to sleep but daddy got there soon after. At 12:44pm you weighed 5lbs 11oz and 19 1/4 inches long. we did not hear you cry very loud and then you were taken away very fast daddy followed you to the nursery. We did not get to see you until later that night. I was so scared when I walked in they said you were breathing on your own but then you were on a ventilator (not sure what they were thinking.) I ask Dr. Colosso if you were going to make it he said I cannot guarantee your life how am I going to guarantee his. That devastated me. You were put on chest tubes the next day. We had a horrible day time nurse she was there all the time and she watch every move we made she was like a mother hawk.

I didn't understand at the time but I wasn't in love with you like a mother should be with her child. I asked your daddy if he loved you he said yes just not the way we loved Christian when we first meet him. It might have been because we were so scared we didn't know if we were going to be able to keep you here or if God was going to take you home, whatever it was we wanted the feeling to pass soon.

The 26th of July you were finally able to be taken off the vent and put on oxygen we finally got to hold you for the first time. So about 2 weeks went by and we finally got that in love feeling me and your daddy looked at each other and for the first time we knew you were ours and God was not going to take you. We were so in love with you from that moment on.

During the duration of the rest of your stay here at the NICU you were put on 8 to 9 chest tubes and different kinds of meds. to help keep the fluid off. They also, changed you formula 3x during this time.



On, August 18th you were weaned off of oxygen and it was up hill from there. It was about 4 weeks into the horrible time at the hospital and I blew up I told Dr. Colosso he is going to have to get me another day time nurse I cannot do it any longer with Michelle. And, by the end of the day we were moved to a different area and nurse.



The 24th we got to stay in a parent room with you and you got to have your first real bath. On the 25th of August was you due date and Praise God it was your take home date. You were a beautiful baby boy and you weighed 6lbs and 12oz. Wow, what God can do. On, the 27 we took you to your Pulmanologist and she put you back on oxygen and back on the same formula as they had you in the NICU. As for the lungs go the right one on the top in slightly collapsed and it probably will be forever.



On the 1st of October we took you to the Cardiologist and he told us you might have Noonan's Syndrome. As, for the heart goes you were going to be OK, but you might need to have a balloon placed soon you have a PVS. On the 7th of October we had to go to the Urologist for your kidney he was not real concerned he said he just wanted to have follow-ups. On October 29th we took you to the Pulmanologist and the tested you for Noonan's Syndrome. They also started weaning you off of oxygen.
Well, This month you started physical therapy with the Arkansas Pediatrics Therapy in Van
Van Buren.


Today was November 8 and it was the first day and you reached for me I was so excited. Today is now November 12 and today we found out you had Noonan's we were so upset but you are going to. Today is November 18 you are 4 months today and you started Physical Therapy.

We are now in December and it is the 7th and today we dedicated you at Roland First Assembly of God and Jonathan Cox did the dedication. It's the 12th and you ate cereal with milk in it. Its the 13th now and I am bored today I guess because we opened the gifts today for Christmas why I really don't know but we did. The 18th you are finally 5 months and you can wear 0-3month clothing.
Yeah, Praise God you are 6 months old you made it to a crucial milestone. January 18th 2009.